A Powerful And Heart Melting Letter From A Pediatric Nurse To Parents Of Disabled Children

Without a question, nursing is among the hardest jobs in the world.

In case you have some close one who is a nurse of if you are a nurse yourself, you probably know that almost for 12 hours a day they walk around tirelessly, assisting and saving people.

In case you aren’t a nurse and if you don’t know a nurse already, roll down to see Miss Colorado strongly explaining meaning of nursing according to her.

Nursing is not only physically tiring, but an emotionally tiring and exhausting profession as well. Most of the time, those who come to you aren’t well at all; particularly if you are in accident department or such, it can be quite disturbing as well, since sometime there is simply no way to help the patient out.

Very of course, nursing always comes with an emotional load. However, pediatric nurses have an extra level of piquancy towards their work. Sometimes they get the happiness of observing kids recover while sometimes they have face the tragedy of seeing their degrading health.

Amanda, a pediatric nurse, helping children with special needs and also blogs at The Zen RN, captures the part of how she finds caring her patients an emotionally balancing thing.

She explains the emotional roller coaster that is a part of her career in an open letter whose title says, “A Letter to parents of Children With Special Needs, From a Pediatric Nurse.” The letter was originally published on The mighty.

Let us know through the comments, what do you feel about her words.

 

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She explains what lead to the origin or this letter, in her email to LittleThings.

“When I wrote this article I was coming home from a very hard shift, working with a medically fragile child. She was sick and struggling to breathe. I fought minute by minute to keep her comfortable and to give her parents a break. After just a few hours, I was exhausted.

“As I finished my shift and gave report to the mom, she looked so broken down and scared. I felt the weight of the world on her shoulders and, as I bolstered her with words of encouragement, I wished that I could say those words and wrap my arms around every parent that was feeling as she was.

“This ‘love letter’ to all special needs parents was born that night and my fervent hope was these words would find their way to any parent that needed to hear them.”

Roll down to see the full version of her powerful message.

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“I’ve worked in pediatric nursing for more than a decade. This work has changed me more than anything else I have experienced in my life. My patients and their families have taught me more than I could have ever taught them. I am so grateful for this extraordinary life.

“For most of my career, I have worked with children with special needs. During my shifts, I have given G-tube feedings, administered medications, held children while they seized, suctioned airways to ensure a child could continue to breathe, moved their limbs so they didn’t stiffen, coordinated all of the child’s therapies, and all of the many other tasks needed simply to keep the child alive and comfortable for another day.

“At the end of my shift, I am always dripping with sweat and exhausted — ready to go home. I give a report to you, the parents, at the end of my shift, and even though you may have already worked a full day at your own job or worked beside me with your child, you do not get to rest. 

You are the parent of a child who needs round-the-clock care, and there is not ‘rest’ for you. I have seen your tired eyes and weary bodies day after day, and yet, you never give up on your child.” 

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“In my career, I have sat beside parents while a doctor gave them the news that no parent should hear — that their child is not long for this world.

“I have held mothers while they wailed the most horrific, animalistic sound of grief after their child took their final breaths.

“I have placed a morgue tag around the toe of tiny bodies.

“I have waited until my shift is over to run to my car and desperately cry into my steering wheel with grief for my patient and their families. 

“The parents I have worked with have often shrugged away my compliments at their strength and tireless work to benefit their children. They have reminded me that they did not ask for this life, but that they love their children enough to keep fighting. 

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I have worked with children when new medications, therapies, and treatments did not work, or worse, were detrimental to the child’s health.

“I have seen you agonize when doctors give you choices and you aren’t sure which to choose for your child.

“I have seen you search the internet with sleep-deprived eyes to find every bit of information you could before making your choice. You often know more about your child’s condition than any doctor or nurse ever could.

“I have held you while you wept when the choice you made did not turn out the way we had all hoped it would, even though you were never, ever at fault for any treatment that failed. 

 

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“The very first family of a child with special needs I worked with told me to never take away their hope.

“That has become a mantra of sorts in my life — to ‘never give up hope’ in my personal life and my work as a nurse.

“I have watched children walk, talk and achieve many things the doctors deemed impossible.

“I have seen children live for many years beyond what many specialists said was possible.

“I have seen children beat odds in extraordinary ways that is nothing short of a miracle.

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The children I have worked with are some of the most extraordinary children on the planet. They inspire me beyond words.

“Over and over and over again, these children — your children — have reminded me what a true miracle is. I am so thankful for them.

“Just as much so, I am thankful for you — the parents of these children. Many of you are so humble that you may shrug off my words, but I wish to say them anyway. 

 

 

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“I know an open letter on the internet from a stranger is a cold thank you for you warriors. I know.

“It is simply too hard to continue to stand aside and not tell each and every one of you how amazing you are, and I have no other way to do so.

“I know how invisible and lonely you must feel at times. I want you to know that I see you — many see you.

“We are inspired by you, each and every day. You make this world a better place, not only for your child, but for all of us.

“You thank us, your nurses, at the end of every shift, and I wonder if we should be the ones thanking you — for giving us the extraordinary gift of getting to know your amazing children and their phenomenal parents.

“Thank you, from the very bottom of my grateful heart.

“All my love,

“Nurse Mandi”

You must be as shaken as we are if you’ve read the letter, feeling those emotions

Don’t forget to SHARE this and spread her wonderful message in your social media and with your family & friends.